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Shine40Plus Conference 2018 - secure your place now!

Shine is delighted to announce that the next Shine40Plus Day Conference will be held at the Holiday Inn, Telford, Shropshire, TF3 4EH on Monday 5th March 2018. The hotel is located only 2 minutes taxi ride from Telford Central Railway Station. 

If you have previously not been aware of, or involved with Shine40Plus, attending the conference is a great way to become involved with this thriving community of Shine members.

The conference is the perfect opportunity to have some fun meeting other Shine 40Plus members, meet key Shine staff, share experiences and consider various aspects of life living with Spina bifida and/or Hydrocephalus, specifically for those 40yrs and over.

There will be a £10 charge per person to attend the day which will include refreshments throughout the day and a buffet lunch provided. The hotel has a limited number of accessible rooms or standard rooms available for those Shine members who want to book accommodation for the night before the conference.

If you wish to book accommodation you must arrange this by contacting the hotel direct on 01952 527 000 and ask for the Reservations Team quoting “Shine Charity Conference”. Shine is not able to assist with cost of accommodation or travel for conference attendees. If you book accommodation please be aware the rooms are limited at the hotel on site, early booking is advised as they will be allocated on a first serve basis.  The hotel will not inform us of your booking therefore you must contact us to complete an application form for the conference.

For those members who wish to book accommodation off site, Shine can provide a list of other hotels with accessible or standard accommodation in the surrounding area on request.

For more information or an application form to book your place/s by the deadline of 12th January 2018 contact Maureen Jobson Tel 01733 555988 or email  

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Some babies with spina bifida are now operated on before they are born, via keyhole surgery.

Hydrocephalus can be congenital or acquired.

NPH (Normal Pressure Hydrocephalus) is an excessive build-up of fluid in the head.

Hydrocephalus is a build up of excess fluid in the brain.

Some 11 - 35% of people with Intracranial Hypertension recover spontaneously!

Most babies with spina bifida undergo surgery within 48 hours of birth.

“Every effort should be made to ensure that all children are immunized, no opportunity to immunize should be missed.”

If you have spina bifida +/or hydrocephalus you should receive the same vaccinations as any others, when going abroad.

Hydrocephalus comes from the Greek "hydro" meaning water and "cephalie", meaning brain.

Some forms of hydrocephalus require no specific treatment.

Medical advice should always be sought if shunt infection is suspected!

Shunt: a device that diverts accumulated cerebro-spinal fluid around the obstructed pathways back to the bloodstream.

Possible signs of chronic shunt blockage include: 
fatigue, general malaise or behavioural changes.

A shunt alert card should be carried at all times by people with hydrocephalus treated by a shunt.

Possible signs of acute shunt blockage may include: visual disturbances, drowsiness and seizures.

Symptoms of Normal Pressure Hydrocephalus are similar to Alzheimer's, Parkinson's disease or simply increasing age.

NPH (Normal Pressure Hydrocephalus) occurs most often in people aged over 60.

Benign Intracranial Hypertension aka Idiopathic Intracranial Hypertension affects about one or two in every 100,000 people!

Symptoms associated with raised intracranial pressure; headache, visual disturbances, photophobia, vomiting, problems with balance...

Diagnosis of Intracranial Hypertension is by scan + measurement of the CSF pressure.

Babies born prematurely are at increased risk of developing hydrocephalus.

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Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine is always looking for Marathon Runners to help with fundraising.

Spina bifida occulta is a hidden form of spina bifida.

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