Chair of Trustees

Shine is currently seeking a new Chair, who will: 

  • provide leadership and direction to the board of Trustees and enable the Board to fulfil their responsibilities for the overall governance and strategic direction of the charity
  • ensure that the charity pursues its objects as defined in its governing document, charity law, company law and other relevant legislation/regulations
  • support the CEO and Shine's Leadership Team to ensure delivery of the aims and objectives of the organisation
  • manage board meetings and engage the trustees in strategic decision-making. 

Ideally, applicants should also have knowledge and understanding of disability, particularly spina bifida and hydrocephalus.  However, this is not essential.

This is a voluntary role.   Please see the role description below for further details.

For an informal conversation about the role, please contact Kate Steele, CEO on 07767 376384 or email


Role Description

Shine is the only charity that works across England, Wales and Northern Ireland to support, empower, inform and enable people with spina bifida and hydrocephalus to help them lead fulfilled and happy lives. 

Our vision is for ‘a society that meets the needs, values the contribution and celebrates the lives of people living with spina bifida and hydrocephalus’.  

As a charity with huge experience, and still plenty of ambition, Shine is seeking a new Chair for our Board – someone with the leadership skills, business experience, and passion to work with the Board of Trustees and Chief Executive Officer to lead the organisation into the future and to help meet the aims and the objectives currently being set for our next Corporate Plan covering 2022-2027. 

The role of Chair is key to the success of the organisation. 

Main duties
  1. To provide leadership and direction to the Board of Trustees and enable the Board to fulfil their responsibilities for the overall governance and strategic direction of the charity.
  2. To manage Board meetings, and engage the trustees in strategic decision-making, drawing on their individual and collective skills, specialisms and knowledge to do so.
  3. To ensure the organisation pursues its objects as defined in its governing document, charity law, company law and other relevant legislation/regulations.
  4. To provide support and supervision to the Chief Executive to deliver on the aims and objectives of the organisation.
  5. To be an ambassador for the charity

As well as a commitment to Shine’s objects, aims and values, and willingness to devote time to carry out responsibilities, Shine is looking for a Chair who:

  • Is strategic and forward-looking, can provide clarity of purpose and focus on the key governance issued and decisions that will advance the aims and objectives of the charity
  • Has demonstrable experience of effective, strategic leadership and business knowhow within a £2m+ organisation (or business department) in the public, private or voluntary sector
  • Has the skills and confidence to effectively manage Board meetings, and move Shine’s strategic agenda forward
  • Has effective communication and interpersonal skills, and listens to, and respects, the opinions of others; can balance tact and diplomacy with willingness to challenge and constructively criticise, and support the Board in making (sometimes difficult) decisions
  • Brings good, independent judgement, political impartiality, and an ability to think creatively in the context of the organisation and external environment
  • Has skills and knowledge to creating productive relationships with, and among, individual board members
  • Understands the distinction between the roles of the CEO and Chair, and will work with the CEO to develop and maintain productive working relationships with Shine’s Senior Leadership Team
  • Is understanding, and accepting of, the legal duties, responsibilities and liabilities of trusteeship and will work to Nolan’s seven principles of public life: selflessness, integrity, objectivity, accountability, openness, honesty and leadership.
Desirable criteria
  • Direct experience of spina bifida and/or hydrocephalus, or other disabilities
  • An understanding of the physical barriers, and attitudes and approaches in society that make life harder for disabled people
  • A wider involvement with the voluntary sector.
Time commitment
  • Four Board meetings per year.  Board meetings are currently being held virtually but there may be a requirement to attend some meetings at Shine’s Head Office in Peterborough as lockdown restrictions lift.
  • An equivalent of up to half a day a month for formal engagements, and meetings with the Chief Executive and others.
Recruitment process
  1. Please contact Kate Steele, CEO at Shine, for an initial discussion about the role on 07767 376384 or email
  2. Submit a CV and supporting statement which should outline your interest and explain how you meet the role criteria
  3. If short-listed, you will be invited for an interview with members of Shine’s Board of Trustees  (held virtually).

This is a voluntary, non-paid role. However, Shine will reimburse any expenses incurred in carrying out this role.

Shine is a committed to equal opportunities and a ‘Positive about Disability’ organisation.  We actively encourage applications from people with disabilities.

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