We have a Shine Anencephaly Support Group which is a closed Facebook group for anyone dealing with the loss of a child to anencephaly. It is a safe, non judgemental place where you can ask questions and openly discuss your feelings with others who share your experience, at any stage of your journey.
This group is managed by Shine’s Health Team, with the help of volunteers who have first hand experience of a pregnancy affected by anencephaly.
Our health team also provide support and important advice on getting ready for a next pregnancy, to help reduce the chances of it happening again.
To join the group visit: www.facebook.com/groups/ShineAnencephalySupport
Join Shine today to receive specialist advice and support. Shine membership is completely free of charge and open to anyone living in England, Wales and Northern Ireland.
If your pregnancy has been affected by spina bifida and/or hydrocephalus, encephalocele, idiopathic intracranial hypertension or anencephaly and you would like some advice or information you can become a prospective member - alternatively, call 01733 555988 and we'll connect you with the most appropriate team.
Have you lost someone to spina bifida, hydrocephalus, spina bifida occulta, normal pressure hydrocephalus (NPH), idiopathic intracranial hypertension (IIH), encephalocele or anencephaly either recently or in the past? You can access support by becoming an honorary member of Shine, or alternatively, call 01733 555988 and we'll connect you with the most appropriate team.
Some hospital trusts have counsellors or you may wish to contact:
73 Charlotte Street, London W1P 1LB
Helpline: 0845 077 2290 (Mon-Fri 10am-5.30pm)
Email: info@arc-uk.org
Website: www.arc-uk.org