Anencephaly Support Group

Shine Anencephaly Support is a closed Facebook group for anyone dealing with the loss of a child to anencephaly. It is a safe, non judgemental place where you can ask questions and openly discuss your feelings with others who share your experience, at any stage of your journey.

This group is managed by Shine’s Health Team, with the help of volunteers who have first hand experience of a pregnancy affected by anencephaly. 

Our health team also provide support and important advice on getting ready for a next pregnancy, to help reduce the chances of it happening again.

To join the group visit:


Some hospital trusts have counsellors or you may wish to contact: 

ARC (Antenatal Results and Choices)

73 Charlotte Street, London W1P 1LB

Helpline: 0845 077 2290 (Mon-Fri 10am-5.30pm)

Donate Become a member