What is Shine Voices?Shine Voices is an exciting new project, bringing together the spina bifida and hydrocephalus communities by sharing stories of true life experiences told by you, for you.
Learn more about life with the conditions from those who know them best, or tell us your own story by creating and adding a video to our Shine Voices library.
Hydrocephalus Awareness Week runs from Monday 7th - Sunday 13th March, and we want to hear from people living with or caring for someone with hydrocephalus.
Check out our video for a guide on how to make the best quality film.
Click here to view this video with subtitles
Once you're ready to get started, click here for our step by step guide to sharing your story
Our Little Stars members (aged 0-11) and their parents/carers discuss life during those important early years.
Listen to our 12 - 18 year old members as they Shine Through Youth, discussing their hobbies, education and more.
As they gain more independence, hear from Shine's adult members as they discuss their lives so far and aims for the future.
This pioneering group talk candidly about their life experience and what living with spina bifida and hydrocephalus means for them
We understand that you may have questions or concerns about uploading videos of yourself to the internet.
We've tried to answer as many as possible and will continue to add to these as we receive new questions about the project.
Get in touch and we'll connect you with a member of our team who can offer you more advice and support.
Shine Voices is delivered with the kind support of the National Lottery Community Fund
Shine reserve the right to make edits to your video in the event of any unsuitable content.
Uploading your video does not guarantee that your video will be used.
For more information, please read our FAQ's.
