What is Shine Voices?

Shine Voices is an exciting new project, bringing together the spina bifida and hydrocephalus communities by sharing stories of true life experiences told by you, for you.

Learn more about life with the conditions from those who know them best, or tell us your own story by creating and adding a video to our Shine Voices library.

Watch stories  Create your own


Get started

Check out our video for a guide on how to make the best quality film.

Click here to view this video with subtitles

Once you're ready to get started, click here for our step by step guide to sharing your story

Watch Shine Voices stories

Parents and Carers

Our Little Stars members (aged 0-11) and their parents/carers discuss life during those important early years.

Watch now


Children and Young People

Listen to our 12 - 18 year old members as they Shine Through Youth, discussing their hobbies, education and more.

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As they gain more independence, hear from Shine's adult members as they discuss their lives so far and aims for the future.

Watch now


Shine 40+

This pioneering group talk candidly about their life experience and what living with spina bifida and hydrocephalus means for them

Watch now



We understand that you may have questions or concerns about uploading videos of yourself to the internet. 

We've tried to answer as many as possible and will continue to add to these as we receive new questions about the project.

Click here to read our Shine Voices FAQs

Need some extra help?

Get in touch and we'll connect you with a member of our team who can offer you more advice and support.

Contact us

Shine Voices is delivered with the kind support of the National Lottery Community Fund


Shine reserve the right to make edits to your video in the event of any unsuitable content.  

Uploading your video does not guarantee that your video will be used. 

For more information, please read our FAQ's.

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