What is Shine Voices?

Shine Voices is an exciting new project, bringing together the spina bifida and hydrocephalus communities by sharing stories of true life experiences told by you, for you.

Learn more about life with the conditions from those who know them best, or tell us your own story by creating and adding a video to our Shine Voices library.

Watch stories  Create your own

 

See what members have to say during Spina Bifida Awareness Week!

This year we're asking people with spina bifida, 'What would you tell your younger self?'.  Click here to see what they have to say, or read on for details of how you create and add your own video to our Shine Voices library.

Shine members tell us 'What they would tell their younger selves'

 

Get started

Check out our video for a guide on how to make the best quality film.

Click here to view this video with subtitles

Visit our top tips page for a list of what else you need to do before uploading your video.

Watch Shine Voices stories

Parents and Carers

Our Little Stars members (aged 0-11) and their parents/carers discuss life during those important early years.

Watch now

 

Children and Young People

Listen to our 12 - 18 year old members as they Shine Through Youth, discussing their hobbies, education and more.

Watch now

 

Adults

As they gain more independence, hear from Shine's adult members as they discuss their lives so far and aims for the future.

Watch now

 

Shine 40+

This pioneering group talk candidly about their life experience and what living with spina bifida and hydrocephalus means for them

Watch now

 

FAQs

We understand that you may have questions or concerns about uploading videos of yourself to the internet. 

We've tried to answer as many as possible and will continue to add to these as we receive new questions about the project.

Click here to read our Shine Voices FAQs

Need some extra help?

Get in touch and we'll connect you with a member of our team who can offer you more advice and support.

Contact us

Shine Voices is delivered with the kind support of the National Lottery Community Fund

 

Shine reserve the right to make edits to your video in the event of any unsuitable content.  

Uploading your video does not guarantee that your video will be used. 

For more information, please read our FAQ's.

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