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Your invitation to become a Shine in The City Partner (SiTC)

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Who we are

Shine is a national registered charity with headquarters in the very heart of Peterborough on Park Road. Shine stands for Spina bifida, Hydrocephalus, Information, Networking and Equality. Shine is the only charity dedicated to supporting families with babies and children, young adults, and individuals affected by Spina bifida, Hydrocephalus and other related conditions which can be life threatening and life limiting. Our services are delivered both close to home in the city and county as well as further afield in England, Wales and Northern Ireland. This year is our 50th Anniversary.

Today, we have over 12,000 members. During the last 12 months we have received 75,000 enquiries. Membership is open to parents with a child with the condition(s), young people and adults who can tap into a number of networks whether that be peer to peer closed social media groups, residential events, 1:1 advice and group support delivered by specialist advisors. We deliver all these services, information and more on a national budget of £1.9 million.

Our work in Peterborough & Cambridgeshire

We are fortunate to benefit from local community groups, volunteers, donations and other acts of generosity within the business community. Shine currently supports 250 members in Peterborough and across the county while receiving nearly 1000 enquiries annually from those seeking help.

Why Shine in The City?

Successfully, tested and launched last year, Shine in The City is a network of local companies and community organisations working in partnership, within the city of Peterborough. The partnership offers benefits to all partners including Shine.

We value the support from city based businesses, their staff, and organisations and we want to celebrate your efforts. We also want to recognise current and new supporters in a more organised way. More businesses and organisations large and small understand the importance of Corporate Social Responsibility. The partnership will raise your CSR profile locally and nationally while endorsing our values and aims.

It’s a mutually beneficial partnership, demonstrating the power of people in Peterborough working together.

Key Benefits include:

  • Training sessions for your staff and members on disability, mental health and mindfulness
  • Invitations to our Annual Awards and VIP seating at other key events
  • Recognition locally and nationally in monthly communications, website & social media platforms, press releases (although we cannot guarantee releases will be published)
  • Articles crafted by us, signed off by you and sent to your industry magazines
  • First consideration for volunteering opportunities
  • Invitations to two networking events with interesting hot topics delivered by high level keynote speakers with - promotional and signage opportunities at these events
  • First consideration for local and national sponsorship opportunities
  • Early notification and invitations to fun events that sell out early - For example our Virtual Balloon Races exposing your business to 7,000 businesses each week.

Impact on your other Charity Commitments

Our SiTC partners CSR and philanthropist endeavours spread far and wide and we understand your staff and company/organisation choose to support other charities through Charity of the Year agreements. Shine asks:-

  • For the opportunity to be included with other charities when the times comes for you to decide, and
  • Introduction to at least one potential new SiTC partner with whom you do business with SiTC is considered by our partners and Shine as a long-term friendship beyond rolling annual Charity of the Year Agreements. SiTC keeps us all in touch, ensuring your local efforts remain visible on an ongoing basis.

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New Educational Lead shares her heart for families and schools

Shine is delighted to welcome Jan Tippett as its new Education Lead. Besides being…

Did You Know?

Some babies with spina bifida are now operated on before they are born, via keyhole surgery.

Hydrocephalus can be congenital or acquired.

NPH (Normal Pressure Hydrocephalus) is an excessive build-up of fluid in the head.

Hydrocephalus is a build up of excess fluid in the brain.

Some 11 - 35% of people with Intracranial Hypertension recover spontaneously!

Most babies with spina bifida undergo surgery within 48 hours of birth.

“Every effort should be made to ensure that all children are immunized, no opportunity to immunize should be missed.”

If you have spina bifida +/or hydrocephalus you should receive the same vaccinations as any others, when going abroad.

Hydrocephalus comes from the Greek "hydro" meaning water and "cephalie", meaning brain.

Some forms of hydrocephalus require no specific treatment.

Medical advice should always be sought if shunt infection is suspected!

Shunt: a device that diverts accumulated cerebro-spinal fluid around the obstructed pathways back to the bloodstream.

Possible signs of chronic shunt blockage include: 
fatigue, general malaise or behavioural changes.

A shunt alert card should be carried at all times by people with hydrocephalus treated by a shunt.

Possible signs of acute shunt blockage may include: visual disturbances, drowsiness and seizures.

Symptoms of Normal Pressure Hydrocephalus are similar to Alzheimer's, Parkinson's disease or simply increasing age.

NPH (Normal Pressure Hydrocephalus) occurs most often in people aged over 60.

Benign Intracranial Hypertension aka Idiopathic Intracranial Hypertension affects about one or two in every 100,000 people!

Symptoms associated with raised intracranial pressure; headache, visual disturbances, photophobia, vomiting, problems with balance...

Diagnosis of Intracranial Hypertension is by scan + measurement of the CSF pressure.

Babies born prematurely are at increased risk of developing hydrocephalus.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine is always looking for Marathon Runners to help with fundraising.

Spina bifida occulta is a hidden form of spina bifida.

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