Healthcare resources for people with spina bifida

Shine offer a range of useful resources and publications to help you communicate with healthcare professionals and share information about spina bifida which can help them to better meet your needs.


What is Spina Bifida?

An introduction to spina bifida containing essential information. Perfect if you want to learn more about your condition, or help those around you to understand it better.

Download What is Spina Bifida?

Important Information About Bladder Cancer

People with spina bifida may be at an increased risk of developing bladder cancer.  Click here for details, and for useful information to share with your GP.

Click here for information about bladder cancer

Letter for General Practitioners (GPs)

Want to help your GP learn more about spina bifida?  This letter can be personalised and added to your file - it explains more about your condition and the health implications they need to be aware of.

Download letter for GPs

Pregnancy for Women With Spina Bifida

Many women with spina bifida will have a safe and successful pregnancy, may need to plan more carefully than other women. Our advice contains information on how to get ready, and what to expect if you decide to try for a baby.

Read information online

Hospital Passport

Should you ever be taken into hospital, a hospital passport contains all the key information professionals will need to give you the best possible care.  We've designed an easy read version for adults with learning impairments which you can fill out online and save to your mobile device for ease of access.

Complete your hospital passport

Easy read hospital passport

Medical Professionals - Who's Who?

You may be referred to a wide variety of professionals throughout your life, each with specific responsibilities and a unique role to play in supporting your health and wellbeing, learn more about them here.

Find out more about the role of professionals

Medical Appointment Checklist

If you have a hospital or GP appointment, it can be difficult to remember and organise your information quickly. Members tell us this has become especially difficult with more and more appointments taking place over the phone, that's why we’ve prepared these notes to help make it easier to prepare.

Our tips on preparing for medical appointments

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