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Tel: 01733 555988

The Chelsea & Westminster MDT Clinic

The Chelsea & Westminster Multidisciplinary Spina Bifida Clinic is a centre of excellence which cares for approximately 500 patients a year from a wide geographical area.

It provides a ‘one-stop’ health check-up for patients living with spina bifida, drawing on the expertise of a range of multi-disciplinary staff.

All patients are seen initially by Dr Richard Morgan, Consultant Physician, in his outpatient clinic for a general assessment.They are then invited to attend the multidisciplinary clinic where all investigations are carried out e.g. blood tests, renal ultra sounds, X-rays [shunts, orthopaedic] and other specialist investigations as required. After this they attend every 18-24 months.

Expertise from various specialists is available at this clinic, such as Continence, OT, Advisor from Shine, Physio, and Neuropsychology, as well as opinions from other Clinical Consultants. Many Shine members attend the clinic at Chelsea and Westminster and report how valuable they find it, and the difference it makes to their quality of life.

This clinic is the only one of its kind in England, and referral can benefit any adult with spina bifida. If you think you would benefit from attending this clinic, you need to ask your GP to refer you. If you have specific health problems related to your spina bifida or hydrocephalus, you should ask your GP to refer you to the appropriate service locally to investigate and treat this, either as well as or instead of the Spina Bifida Clinic.

Further information from: Ann Wing, Spina Bifida Nurse Specialist & Clinic Co-ordinator, Chelsea Westminster Hospital, 369 Fulham Rd, London, SW10 9NH. Email:

Referrals to be made by GPs and addressed to: Dr R Morgan, Chelsea Westminster Hospital, 369 Fulham Road, London SW10 9NH. Fax number: 0203 315 8040



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Did You Know?

Some babies with spina bifida are now operated on before they are born, via keyhole surgery.

Hydrocephalus can be congenital or acquired.

NPH (Normal Pressure Hydrocephalus) is an excessive build-up of fluid in the head.

Hydrocephalus is a build up of excess fluid in the brain.

Some 11 - 35% of people with Intracranial Hypertension recover spontaneously!

Most babies with spina bifida undergo surgery within 48 hours of birth.

“Every effort should be made to ensure that all children are immunized, no opportunity to immunize should be missed.”

If you have spina bifida +/or hydrocephalus you should receive the same vaccinations as any others, when going abroad.

Hydrocephalus comes from the Greek "hydro" meaning water and "cephalie", meaning brain.

Some forms of hydrocephalus require no specific treatment.

Medical advice should always be sought if shunt infection is suspected!

Shunt: a device that diverts accumulated cerebro-spinal fluid around the obstructed pathways back to the bloodstream.

Possible signs of chronic shunt blockage include: 
fatigue, general malaise or behavioural changes.

A shunt alert card should be carried at all times by people with hydrocephalus treated by a shunt.

Possible signs of acute shunt blockage may include: visual disturbances, drowsiness and seizures.

Symptoms of Normal Pressure Hydrocephalus are similar to Alzheimer's, Parkinson's disease or simply increasing age.

NPH (Normal Pressure Hydrocephalus) occurs most often in people aged over 60.

Benign Intracranial Hypertension aka Idiopathic Intracranial Hypertension affects about one or two in every 100,000 people!

Symptoms associated with raised intracranial pressure; headache, visual disturbances, photophobia, vomiting, problems with balance...

Diagnosis of Intracranial Hypertension is by scan + measurement of the CSF pressure.

Babies born prematurely are at increased risk of developing hydrocephalus.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine is always looking for Marathon Runners to help with fundraising.

Spina bifida occulta is a hidden form of spina bifida.


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