Our research reports will help you to better understand and support your patients and clients with spina bifida and/or hydrocephalus.
Antenatal Report
Our findings and recommendations for improving antenatal diagnosis and care for spina bifida following Shine’s survey of parent experiences.
'1000 Voices' Full Report
Our study of over 1000 experiences of living and ageing with spina bifida in England, Wales, and Northern Ireland. This detailed report includes recommendations for professionals.
Download '1000 Voices' Full Report
'1000 Voices' Members Summary
Accessible lay-summary of our study of living and ageing with spina bifida, designed to help people to better understand and manage their condition at different life stages.
