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Christmas Campaign 2017

We aim to raise £5000 during December to fund part of our 'Shine Brighter' education project, and now you can pledge your support by making a donation via our Just Giving page (below).

Central to our Corporate Plan, the project aims to give more than 3,000 children with spina bifida and hydrocephalus greater access to opportunities in education over the next five years.

Poppy (pictured above) and many children like her are the inspiration behind 'Shine Brighter'. 

At face value, she and her twin sister are identical, but the complexities of Poppy's condition mean things which come easily to Connie aren't always so straightforward.

Shine aim to tackle this by developing life changing resources for children, families and educational professionals which will help unlock the potential in children like Poppy as well as providing support and information to teachers to ensure children in need of extra support don't get left behind.

“As a mum of a child with spina bifida, I know from personal experience the daily challenges facing a child with a condition that affects learning, movement and health, and the amazing difference good support at school makes.” Sam Gardiner, Poppy’s mum

To reach our goal, we're asking members, friends, family and colleagues to get involved with fundraising throughout December. 

Below are just a few ways to get involved:

Swap Christmas Cards for a donation

Fast becoming a popular way to raise funds in the workplace.  Instead of giving colleagues Christmas cards, why not leave them a message on our poster (available to download below) and donate what you might have spent to support our appeal and help fund our vital education work.

Run for a good 'Claus'

Take part in one of the many Santa Dashes taking place across England, Wales and Northern Ireland

Christmas Jumper Week 

We've crowned 11th December to 17th December Christmas Jumper Week.  Encourage your friends, colleagues or team mates to pull on their finest festive threads

As always, our fundraising team are on hand to help you make the most of your event so if you'd like to try this, or anything else, just give us a call on 01733 555988 or contact us here

Alternatively, you can make a donation to our Christmas Campaign at any time during December by visiting our Just Giving page here


£3 will buy a Benny & Bella book to help a child learn

£20 will provide an advisory session with a Shine specialist

£50 will enable a school visit by a Shine support worker


One Way You Can Crush Your Fears

A young woman from Lincolnshire will soon be facing her deepest fear - by…

Did You Know?

Some babies with spina bifida are now operated on before they are born, via keyhole surgery.

Hydrocephalus can be congenital or acquired.

NPH (Normal Pressure Hydrocephalus) is an excessive build-up of fluid in the head.

Hydrocephalus is a build up of excess fluid in the brain.

Some 11 - 35% of people with Intracranial Hypertension recover spontaneously!

Most babies with spina bifida undergo surgery within 48 hours of birth.

“Every effort should be made to ensure that all children are immunized, no opportunity to immunize should be missed.”

If you have spina bifida +/or hydrocephalus you should receive the same vaccinations as any others, when going abroad.

Hydrocephalus comes from the Greek "hydro" meaning water and "cephalie", meaning brain.

Some forms of hydrocephalus require no specific treatment.

Medical advice should always be sought if shunt infection is suspected!

Shunt: a device that diverts accumulated cerebro-spinal fluid around the obstructed pathways back to the bloodstream.

Possible signs of chronic shunt blockage include: 
fatigue, general malaise or behavioural changes.

A shunt alert card should be carried at all times by people with hydrocephalus treated by a shunt.

Possible signs of acute shunt blockage may include: visual disturbances, drowsiness and seizures.

Symptoms of Normal Pressure Hydrocephalus are similar to Alzheimer's, Parkinson's disease or simply increasing age.

NPH (Normal Pressure Hydrocephalus) occurs most often in people aged over 60.

Benign Intracranial Hypertension aka Idiopathic Intracranial Hypertension affects about one or two in every 100,000 people!

Symptoms associated with raised intracranial pressure; headache, visual disturbances, photophobia, vomiting, problems with balance...

Diagnosis of Intracranial Hypertension is by scan + measurement of the CSF pressure.

Babies born prematurely are at increased risk of developing hydrocephalus.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine is always looking for Marathon Runners to help with fundraising.

Spina bifida occulta is a hidden form of spina bifida.


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