Join Shine Today - For FREE!

Join the UK's leading charity for people with spina bifida and hydrocephalus and start accessing specialist advice and support today. Shine membership is completely free of charge and open to anyone living in England, Wales and Northern Ireland.

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Professional Membership is also available, click here for more information

Child/Young Person Membership (under 18)

If you are the parent of a child or young person aged under 18 who has Spina Bifida and/or Hydrocephalus, Spina Bifida Occulta, Idiopathic Intracranial Hypertension (IIH) or Encephalocele please complete this form to register your child as a member of Shine.

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Adult Membership (aged 18+)

Are you aged 18 or over and have a diagnosis of Spina Bifida and/or Hydrocephalus, Spina Bifida Occulta, Normal Pressure Hydrocephalus (NPH), Idiopathic Intracranial Hypertension (IIH), Encephalocele? Complete this form and join Shine today to access expert support and connect with like minded people.

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Expecting a Baby?

If you are expecting a baby affected by Spina Bifida, Hydrocephalus, Encephalocele or Anencephaly and you would like some advice, support or information you can become a prospective member - alternatively, call 01733 555988 and we'll connect you with the most appropriate team.

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Parent or Carer Membership of someone 18 or over with Spina Bifida and/or Hydrocephalus, Spina Bifida Occulta, Normal Pressure Hydrocephalus (NPH), Idiopathic Intracranial Hypertension (IIH), or Encephalocele

If you are the parent of, or care for someone who is 18 or over and has Spina Bifida and/or Hydrocephalus, Spina Bifida Occulta, Normal Pressure Hydrocephalus (NPH), Idiopathic intracranial hypertension (IIH), or Encephalocele, Shine is here to help you. Please complete this form and join Shine today to connect with like-minded people and access expert support. (If you want to discuss the needs of the person you care for we would need their consent to be able to do this).

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Sibling Membership

If your brother or sister has Spina Bifida and/or Hydrocephalus, Spina Bifida Occulta, Normal Pressure Hydrocephalus (NPH), Idiopathic Intracranial Hypertension (IIH), or Encephalocele and you would like to gain information on how to support them, Shine is here to help. You may also want to attend sibling events.

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Bereaved parent/carer

Have you lost someone to Spina Bifida, Hydrocephalus, Spina Bifida Occulta, Normal Pressure Hydrocephalus (NPH), Idiopathic Intracranial Hypertension (IIH), Encephalocele or Anencephaly either recently or in the past? You can access support by becoming a member of Shine, or alternatively, call 01733 555988 and we'll connect you with the most appropriate team.

Become a member

Become a 'friend of Shine'

If you want to know more about Spina Bifida and/or Hydrocephalus, Spina Bifida Occulta, Normal Pressure Hydrocephalus (NPH), Idiopathic Intracranial Hypertension (IIH), Encephalocele or Anencephaly, but do not directly care for someone with the conditions – whether as a professional or family member, become a friend of Shine today.

Become a member

Membership Benefits

By joining Shine’s community of members, families, friends and professionals you will receive access to the following services, completely FREE of charge:

Help, advice and support from our experienced staff teams who have specialist knowledge in the conditions we represent (Spina Bifida, Spina Bifida Occulta, Hydrocephalus, Normal Pressure Hydrocephalus (NPH), Encephalocele and Anencephaly).

This includes:

Health Specialists with expert condition knowledge to answer your health queries, help you prepare for medical appointments and give you OT and Physio advice.
Specialist Benefit Advisors to help you access the financial assistance you are entitled to.
Support and Development Workers (SDWs) who will help you through any of life’s challenges (common support requests cover care, housing, education, employment, equipment grants)
Early Intervention Workers who are dedicated to helping our 0-12 year old members to thrive and helping parents and families to navigate all of the ups and downs

...as well as...

Access to a network of friends and peers amongst our 12,000 + members
Invitations to virtual, regional and national events and support groups
Invitations to join virtual peer support networks and specialist closed zoom sessions
Option to join Shine Health Direct, our Home Delivery Service
A free copy of our twice yearly magazine ‘Together’

Register online now and once your form has been processed a Support and Development Worker will give you a call to introduce themselves to you.

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