Become a Sibling Member of Shine for FREE

If your brother or sister has spina bifida and/or hydrocephalus, spina bifida occulta, normal pressure hydrocephalus (NPH), idiopathic intracranial hypertension (IIH) or encephalocele and you would like to gain information on how to support them. You may also want to attend sibling events. 

Become a sibling member today

Update your contact details

If you're already a member but would like to update the information we hold for you, please click here


Our offer to you...

By joining Shine’s community of members, families, friends and professionals you will receive access to the following services, completely FREE of charge:

  • Help, advice and support from our experienced staff teams who have specialist knowledge in the conditions we represent (spina bifida, spina bifida occulta, hydrocephalus, normal pressure hydrocephalus (NPH), encephalocele and Anencephaly).

This includes:

  • Health Specialists with expert condition knowledge to answer your health queries, help you prepare for medical appointments and give you OT and Physio advice.
  • Specialist Benefit Advisors to help you access the financial assistance you are entitled to.
  • Support and Development Workers (SDWs) who will help you through any of life’s challenges (common support requests cover care, housing, education, employment, equipment grants)
  • Early Intervention Workers who are dedicated to helping our 0-12 year old members to thrive and helping parents and families to navigate all of the ups and downs

...as well as...

  • Access to a network of friends and peers amongst our 12,000 + members
  • Invitations to virtual, regional and national events and support groups
  • Invitations to join virtual peer support networks and specialist closed zoom sessions
  • Option to join Shine Health Direct, our Home Delivery Service
  • A free copy of our twice yearly magazine ‘Together’

Register online now and once your form has been processed a Support and Development Worker will give you a call to introduce themselves to you.

Become a sibling member today

Need advice urgently?

If you need support or advice quickly,  please ring our helpline on 01733 555988 (between 9am and 5pm  Monday to Friday) and we can register you over the phone and connect you with the right person to help you. 

 

Become a sibling member today

Just complete the short form below to access a range of membership benefits.  For information about how Shine will store and use your personal data, please ensure you read our privacy policy before submitting your application.

 

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Legitimate Interest:

Following the introduction of new data protection laws in May 2018, Shine will communicate with members under the terms of ‘legitimate interest’. ‘Legitimate interest’ allows us to use your personal information in ways you could reasonably expect, and which have a minimal impact on your privacy. In each instance, we endeavour to carefully consider any impact on your personal rights and interests. Shine will communicate with you in line with the benefits of membership as set out within your application. Typical examples of when we might use this approach include:

• To tell you about the work Shine is doing

• To notify you of news, research and developments relevant to your condition

• To invite you to events where you can meet and connect with professionals and peers

• To share good news and success stories from the Spina Bifida and Hydrocephalus communities

• To seek your views on upcoming plans and projects

Supporters Consent:

In addition to news, updates and invitations, Shine would also like to email you with information about ways you can support the charity and our work in the future. This may include:

• Ways to donate or raise money for us

• How to get involved with campaigns

• Volunteering opportunities

If you consent to receiving emails from us about upcoming appeals and opportunities please tick the box below.

How to change or withdraw your consent:

You can change the way you hear from us or withdraw your permission for us to process your personal details at any time by using our contact form on the ‘Contact Us’ page or by calling us on 01733 555988.

 

 
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