Catch up now on any of our publicly broadcast live sessions below, or check out the events listing for details of our upcoming events.
Originally broadcast on Friday 30th October, in this session we discuss the findings from our groundbreaking '1000 Voices' survey, what we've learned, and our top tips and advice for better healthcare, including tips on how to get the most out of our new letter, written especially for GP's.
Originally broadcast on Thursday 26th November 2020 we look at what carers need to consider both now and for the future including Carers Rights, Power of Attorney, Self Advocacy, Forward Planning. This session will be presented by Beth Evans, from CarersUK.
Originally broadcast Tuesday 27th October, this session contains information for people living with spina bifida and hydrocephalus, about the need for better personal financial management, including practical tips on finance topics such as budgeting and benefits.
Originally broadcast on Wednesday, 9th December 2020 this session focuses on mental wellbeing and how to manage anxiety and depression at Christmas.
Originally broadcast on Wednesday, 28th October 2020 this session covers the importance of prevention and early intervention to reduce the severity of developing skin problems.
Originally broadcast on Thursday, 29th October 2020 this session covers the importance and benefits of careful bladder and bowel management, including useful hints and tips to get you started.
Originally broadcast on Monday, 26th October 2020 this session covers the importance and benefits of managing your mental health, including useful hints and tips to get you started.
Originally broadcast on Friday, 23rd October 2020 this session covers the importance and benefits of healthy living, including useful hints and tips to get you started.
Originally broadcast on Friday 13th November 2020 this session looks at great hints and tips to understand and encourage developmental progress prior to walking.
Originally broadcast on Tuesday 26th January 2021 this session focuses on lymphoedema - what people with spina bifida need to know. This condition can affect babies, children and adults with spina bifida. We are joined by a guest speaker from Lymphoedema Network Wales.
Originally broadcast on Monday 23rd November 2020 this session looks at Dynamic Movement Skills to improve agility, coordination, balance, speed and stamina.
Originally broadcast on Wednesday 28th April 2021, this session focuses on using apps to assist us with managing your condition and help to improve your well-being.
Originally broadcast on Tuesday 29th June 2021, this session focuses on what we learnt from the Shine 1000 Voices Survey about spina bifida and arthritis, and discuss daily management tips. We are joined by guest speaker Sarah Greener, from Versus Arthritis, and she talks about the support they can offer.