New to hydrocephalus

If you, a friend or a loved one has just had a diagnosis of hydrocephalus, or you are looking for more information on the conditions and treatment options, this section features information to help.

What is hydrocephalus?

A build up of fluid on the brain, hydrocephalus can have a range of physical and cognitive effects. Click here to learn more about the condition, how it occurs and its many different forms.

Learn more about the condition

Related conditions

Alongside hydrocephalus, there a number of related conditions including Intracranial Hypertension and Normal Pressure Hydrocephalus. You can find more information on these conditions in this section. 

Read about related conditions

 

Advice for parents

After an initial diagnosis, it can be scary and daunting thinking about how best to care for your child. Lots of children can lead full and fulfilling lives. This section tells you what to expect at different points in your child’s development, as well as help and advice.

For specific information on shunts and shunt malfunction, click here.

Living with hydrocephalus

This section has been written to help you avoid some of the common health problems associated with hydrocephalus, and what support your GP can provide to help you live life to the full.

Advice

 

Support with living

 

Resources

Hydrocephalus Resource Hub

Whether you're living with or caring for someone with hydrocephalus, you'll love this easy to use resource hub.

We've pulled together our most popular information on a range of topics Shine members have told us are the most important to them, and made them all available here to access, order or download.

View Hydrocephalus Resource Hub

 

 

  

Advice for professionals

People with hydrocephalus can be affected by their condition in a number of often subtle ways. The degree of impact varies a great deal. Some people may have few or no difficulties, others can find their day-to-day life very difficult indeed.

Shine can provide resources, answer questions, and assist with signposting.  We can also help with research recruitment and support, and can contribute to your continuing professional development. We invite you to explore our professional pages, and to sign up as a member to access more information and support. 

Professionals Resource Hub

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