New to hydrocephalus

If you, a friend or a loved one has just had a diagnosis of hydrocephalus, or you are looking for more information on the conditions and treatment options, this section features information to help.

What is hydrocephalus?

A build up of fluid on the brain, hydrocephalus can have a range of physical and cognitive effects. Click here to learn more about the condition, how it occurs and its many different forms.

Learn more about the condition

Related conditions

Alongside hydrocephalus, there a number of related conditions including Intracranial Hypertension and Normal Pressure Hydrocephalus. You can find more information on these conditions in this section. 

Read about related conditions


Advice for parents

After an initial diagnosis, it can be scary and daunting thinking about how best to care for your child. Lots of children can lead full and fulfilling lives. This section tells you what to expect at different points in your child’s development, as well as help and advice.

For specific information on shunts and shunt malfunction, click here.

Living with hydrocephalus

This section has been written to help you avoid some of the common health problems associated with hydrocephalus, and what support your GP can provide to help you live life to the full.



Support with living


Advice for professionals

People with hydrocephalus can be affected by their condition in a number of often subtle ways. The degree of impact varies. Some people may have few or no difficulties, others can find their day-to-day life very difficult indeed.

This section helps you understand the needs of people impacted by hydrocephalus and how you can support them.

  • Information for GP's

  • Support for Schools

FREE membership, join today!

As a member of the Shine family, you'll receive:

  • FREE access to national and regional support events
  • Invitations to national and regional events
  • A network of friends and peers to help you
  • FREE help and advice from our trained specialists
  • A FREE copy of our twice yearly magazine, Together
  • Option to join our FREE home delivery service

Join the Shine family today!


Donate Become a member