New Facebook Groups - FAQ's

Shine is converting it's Cymru, Northern Ireland and Fundraising Facebook pages into closed, community groups.  If you currently follow any of these pages and are affected by this change, please refer to the FAQ's below which will explain why this has happened, and what action you need to take.

When can I join the new groups? 

The new groups will be live from Monday 12th of July 

How long do I have before the existing pages close? 

The existing Cymru, Northern Ireland and Fundraising Facebook pages will remain open until Monday 9th of August 

Are any other Shine pages closing? 

No.  Our main Facebook page (@ShineUKCharity) will remain, providing a national source of news and information, and our other age-specific community groups including Little Stars, This is Me, Shine Through Youth, 40+ and Blue Blobbers groups will remain unchanged. 

What if I forget to join one of the new groups? 

Between Monday 12th July and Monday 9th August, we will be posting regularly to social media to remind you of the changes.  If you are a registered Shine member and we have permission to email you, you will also receive an email with one week and one day to go before the existing pages are closed. 

If you still forget, don’t worry – you'll be able to join the groups at any time by visiting our main Facebook page (@ShineUKCharity) and selecting the 'groups' option.

Who else can join the new groups? 

Membership of the new Cymru and Northern Ireland groups will be granted to anyone living in those countries who is affected by spina bifida and or hydrocephalus, and who is also a registered member of Shine.  Membership may also be granted to friends and family members, providing they too have registered to become Shine members. 

Shine staff may also be present in the group to share important information, updates or details of upcoming events. 

Anyone who is an existing supporter of Shine or would like to take part in fundraising activity in the future is eligible to join the new Shine Fundraising group, full membership of the charity is not required.

Why have we done this? 

We wanted to make sure that all members of our Facebook groups received the same information at the same time – this hasn’t always been possible with so many places to manage.  These new groups will be your one stop shop for all information relevant to the spina bifida and hydrocephalus communities in your area of interest. 

We also think itimportant to connect you with even more people who have spina bifida and or hydrocephalus, and who’ve had similar experiences to you - this peer network is very important to many of our members at those times when it feels like no-one around understands you. 

The new group will also increase your access to our team of Support and Development workers in Cymru and Northern Ireland by bringing them all together in one place, and to our Fundraising team for supporters. 

Can we add you to the new group automatically? 

Sadly not.  You will need to join the new groups yourself, but if you don’t, the existing pages will still be deleted on Monday 9th August as part of the closure process. 

How do I join the new groups? 

  1. Visit 
  2. From the menu options beneath the Shine banner, select More 
  3. Scroll down and select Groups 
  4. Find the group you want to join amongst the list, and click Join Group 

Or watch the video below for a demonstration 

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