Tel: 01733 555988
The Shine Adult Members Council (SAMC) is a representative group of adult members and is involved at all levels of the organisations activities.
We have a range of advice and free information to help you with managing your money and working out what benefits or tax credits you might be entitled to.
Benny Bear is a special bear who has a shunt to help treat his hydrocephalus! Here you can send Benny a postcard, join the Benny Bear club, order some Benny Bear books or visit Benny's Facebook page!
Our charity provides support in England, Northern Ireland and Wales, and our staff organise a range of events throughout the year! Check out what's coming up in your local area!
Aged 40 or over? Looking to connect with other people living with Spina Bifida and/or Hydrocephalus? This is the group for you! Share experiences and act as a voice for your pioneering generation.
A club designed to link together 11 – 14 year old members with spina bifida and/or hydrocephalus. Become a member for FREE, join our Facebook group or simply find out more about what we do!
Some babies with spina bifida are now operated on before they are born via keyhole surgery.
Hydrocephalus can be congenital or acquired.
NPH (Normal Pressure Hydrocephalus) is an excessive build-up of fluid in the head.
Hydrocephalus is a build up of excess fluid in the brain.
Some 11 - 35% of people with Intracranial Hypertension recover spontaneously!
Most babies with spina bifida undergo surgery within 48 hours of birth.
“Every effort should be made to ensure that all children are immunized, no opportunity to immunize should be missed.”
If you have spina bifida +/or hydrocephalus you should receive the same vaccinations as any others, when going abroad.
Hydrocephalus comes from the Greek "hydro" meaning water and "cephalie", meaning brain.
Some forms of hydrocephalus require no specific treatment.
Medical advice should always be sought if shunt infection is suspected!
Shunt: a device that diverts accumulated CSF around the obstructed pathways back to the bloodstream.
Possible signs of chronic shunt blockage include:
fatigue, general malaise or behavioural changes.
A shunt alert card should be carried at all times by people with hydrocephalus treated by a shunt.
Possible signs of acute shunt blockage may include: visual disturbances, drowsiness and fits.
Symptoms of Normal Pressure Hydrocephalus are similar to Alzheimer's, Parkinson's disease or simply increasing age.
NPH (Normal Pressure Hydrocephalus) occurs most often in people aged over 60.
Benign Intracranial Hypertension aka Idiopathic Intracranial Hypertension affects about one or two in every 100,000 people!
Symptoms associated with raised intracranial pressure; headache, visual disturbances, photophobia, vomiting, problems with balance.....
Diagnosis of Intracranial Hypertension is by scan + measurement of the CSF pressure.
Babies born prematurely are at increased risk of developing hydrocephalus.
Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.
Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.
Hydrocephalus may affect memory, concentration and behaviour.
The usual treatment for hydrocephalus is to insert a shunt into the brain.
CSF stands for cerebro-spinal fluid.
Benny Bear is a teddy with hydrocephalus who helps children understand the condition.
Shine is always looking for Marathon Runners to help with fundraising.
Spina bifida occulta is a hidden form of spina bifida.
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42 Park Road, Peterborough, PE1 2UQ | Call: 01733 555988
Copyright Shine 2011, Registered Charity No: 249338 | Registered in London no. 877990 | Call: 01733 555988 | 42 Park Road, Peterborough, PE1 2UQ